European Porphyria Network
About EPNET
What is EPNET ?
Membership application
Statutes & bylaws
EPNET Executive Board
General Assemblies
EPNET Working Groups
Porphyria centres
Patient organizations
Corporate members
Honorary members
Patients
Introduction to porphyria
GPAC information statement
Acute porphyria
Drugs and acute hepatic porphyrias
Acute porphyria - diagnosis - FAQ
Porphyria Cutanea Tarda (PCT)
Erythropoietic Protoporphyrias (EPP & XLP)
Congenital erythropoietic porphyria (CEP)
Skin Protection in Cutaneous Porphyria
Patient organizations
Porphyria centres
Professionals
The porphyrias
Laboratory diagnosis
Investigating the family
Treatment of the acute attack
Drugs and acute hepatic porphyrias
Webinars
Porphyria centres
Research
Contact
You are here
Home
»
Patients
» Patient organizations
Patient organizations
Australia
Denmark
France
Sweden
Spain
Switzerland
United Kingdom
USA (Bethesda)
Global (in Durham, United Kingdom : Global Patient Advocacy Group - GPAC)
