The 2020 Ipnet General Assembly and Scientific Meeting were transitioned to a digital event on December 4th, 2020. Here is the program, including 9 videos: 6 presentations from the General Assembly and 3 presentations from the Scientific Meeting. These videos are available following the links below.
General Assembly Meeting Ipnet Association
December 4 th , 2020 at 12:00 – 14:00 CET
- Opening and Welcome, by Sverre Sandberg
- Approval of Minutes GA Meeting Sep 9 th , 2019, by Eliane Sardh
- Presentation of EB Board 2021-22, by Sverre Sandberg
- Report of Ipnet activities, by Sverre Sandberg
- Financial information, by Janneke Langendonk
- Reports from Working Group Chairs
- Laboratory WG
- Acute Hepatic Porphyria WG
- Cutaneous Porphyria WG
- Research & Development WG
- Website WG. - Conclusion and Closure, by Sverre Sandberg
Scientific Meeting Ipnet Association
December 4 th , 2020 at 15:30 – 18:30 CET
1. Givosiran: Efficacy, safety and therapeutic scheme, by Eliane Sardh, Stockholm
2. Iron deficiency as a treatment of CEP, by Emmanuel Richard, Bordeaux
3. Generation and Characterization of an Inducible Hepatocyte-specific ALAS1 Knockout Mouse
Model, by Makiko Yasuda, New York
4. Farewell Biorad: MS methods for PBG/ALA, by Thibaud Lefebvre, Paris
5. Highlights from the MT-7117 Dersimelagon Phase 2 Muticenter, Double-Blind, Placebo-
Controlled Trial in 102 EPP Patients, by Robert Desnick, New York