Belgium

City: 

Leuven

Name of Centre: 

Metabolic Center Leuven

Full address: 

Herestraat 49
3000 Leuven

Email: 

mz@uzleuremoveven.be

Tel: 

003216344649

Fax: 

003216345347

Director: 

MD, PhD David Cassiman

Email: 

david.cassiman@uzleuvenremove.be (we do not offer medical advise via email)

Tel: 

0031216344649

Activities: 

University Hospital Leuven is a large university referral center for rare diseases and a hub of European Reference Networks (ERNs). It is a reference center for diagnostics, treatment and clinical follow-up for porphyria patients. We follow a large cohort of acute porphyria patients (with expertise in liver transplantation for this indication), EPP patients and PCT patients. We participate to international registries, natural history studies and treatment trials for porphyria.

Clinical questions contact: 

Prof. Dr. David Cassiman

Email: 

david.cassiman@uzleuvenremove.be

Tel: 

003216344649

Laboratory contact: 

Prof. Pieter Vermeersch

Email: 

pieter.vermeersch@uzleuremoveven.be

Tel: 

003216347018