European Porphyria Network
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» Canadian Association for Porphyria
Canadian Association for Porphyria
Country:
Canada
Organisation Name:
Canadian Association for Porphyria/Association Canadienne de Porphyrie
Email:
con
remove
tact@porphyriacanada.ca
Website:
https://www.porphyriacanada.ca
Porphyria Related Activities:
• Information on diagnosis, treatment and management of the porphyrias
• Help with referrals and access to testing
• Gatherings and presentations for people living with porphyria
• Advocate for access to treatments in Canada
