President: Sverre SANDBERG
Norwegian Porphyria Centre, Bergen - Norway
sverre.sanremovedberg@uib.no


Secretary: Eliane SARDH
Porphyria Centre Sweden, Stockholm – Sweden  
eliane.sarremovedh@ki.se


Treasurer: Janneke LANGENDONK
Porphyria Center, Rotterdam - The Netherlands
epremovenet.treasurer@erasmusmc.nl


Member at Large: Michael BADMINTON
Cardiff SAS Porphyria, Cardiff - United Kingdom
Mike.Badremoveminton@wales.nhs.uk


Member at Large: Maria Domenica CAPPELLINI
Rare Disease Center, Milan - Italy
maria.cappremoveellini@unimi.it


Member at Large: Jordi TO-FIGUERAS
Hospital Clinic of the University of Barcelona - Spain
JTremoveO@clinic.cat


Member at Large: Laurent GOUYA
French Centre of Porphyrias, Paris - France
laurent.gouya@inseremoverm.fr


Patient Representative: Liz GILL
British Porphyria Association - United Kingdom
liz.gill@porphyremoveria.org.uk