Porphyria Information Resources on the WWW

This information is not a complete list of resources. It is intended as a starting point for those interested in finding more information.

- The Drug database for acute hepatic porphyrias from the Norwegian Porphyria Centre (NAPOS)


- The Porphyrias Consortium

The Porphyrias Consortium includes six of the leading porphyria centers in the United States, as well as three Satellite sites, that provide expertise and experience in the diagnosis and treatment of patients with porphyria.


- Rare connect

A safe, easy to use platform where rare disease patients, families and patient organizations can develop online communities and conversations across continents and languages.


- Link to PubMed

PubMed (Keyword: porphyria)