Ipnet Executive Board 2023-24
President: Sverre SANDBERG
Norwegian Porphyria Centre, Bergen - Norway
sverre.sandberg@uib.no
Secretary: Eliane SARDH
Porphyria Centre Sweden, Stockholm – Sweden
eliane.sardh@regionstockholm.se
Treasurer: Janneke LANGENDONK
Porphyria Center, Rotterdam - The Netherlands
epnet.treasurer@erasmusmc.nl
Patient Representative: Liz GILL
British Porphyria Association - United Kingdom
liz.gill@porphyria.org.uk
Member at Large: Maria Domenica CAPPELLINI
Rare Disease Center, Milan - Italy
maria.cappellini@unimi.it
Member at Large: Jordi TO-FIGUERAS
Hospital Clinic of the University of Barcelona - Spain
JTO@clinic.cat
Member at Large: Michael BADMINTON
Cardiff - United Kingdom
badmintonmn@cardiff.ac.uk
Member at Large: Laurent GOUYA
French Centre of Porphyrias, Paris - France
laurent.gouya@inserm.fr